These links have been generously contributed by our members through our mailing list and online group.


ME/CFS Coping strategies and resources
Ricky


ME/CFS Support groups and Associations


cfids_me livejournal community: http://community.livejournal.com/cfids_me/
Very helpful and friendly group of people. You'll need a livejournal account to comment or post, but anyone can read the posts. Sophie

ME/CFS Society of Western Australia: http://www.mecfswa.org.au/
Where I found out about this study! Send out newsletters and emails every now and then with local information. I never managed to figure
out the online forum. Sophie

Gimp Girl: http://www.gimpgirl.com/
I only just found this disabled women's(*) group, but they have their own Second Life meetings (as well as using twitter, irc and other mediums). (*)Apologies to anyone who doesn't identify as female, this is the only group like this I know of. They do have public meetings which
allow people who aren't female/disabled. Sophie

Disability, feminism, science fiction fan fiction blogs
I also read a bunch of communities and blogs focussing on the intersections of disability and feminism or science fiction fandom. If those subjects interest anyone I can pass on those links too. Sophie



Education and advocacy about ME/CFS

Invest in ME    www.investinme.org
For those seeking info for their support group, or for their own purposes, they have produced some excellent education materials relevant for science education on ME, as well as a book of stories of injustice, survival, art, and compassion:

1. They host an annual conference and sell dVD's - I have all of them and find them superb. They are relatively inexpensive DVD's of top international researchers presenting on the latest research findings as well as speakers addressing the status of ME politically
2. There is a book they have put out called Lost Voices, great for those interested in a coffee table type volume which presents the writing, poetry and stories of severely ill ME patients along with scientific explanations about the illness. To help family understand - I found it super, though very sad to read the stories since I too was that sick for many years and am still housebound and isolated 98%.

Just so you know, I am a Canadian and have no vested interest in that group, I just found their materials particularly apt for my advocacy efforts and education on the science.
Linda




Other ME/CFS Online Resources

CFS/FMS World Map    http://xmrv.me.uk/me-cfs-global-map.php
You may like to add your details to the Google Map of CFS/FMS World Map at:
http://xmrv.me.uk/me-cfs-global-map.php Priscilla